Unfortunately E has not come home with us as planned. On Sunday night she went to the nursery so mom could get some rest and would be brought to my room for feedings. While in the nursery, one very attentive nurse realized E wasn't responsive and was quite lethargic so called the pediatrician who recommended a blood glucose test. This was done and the reading was a 11 when a normal reading should be at least 50. She was brought to my room at 3:30 a.m. and I was told she needed to go to the NICU immediately and I should kiss her good-bye. My was that a wake up call. Thankfully the woman's hospital has a state of the art NICU and she was in great hands. They were able to stabilize her glucose levels with a glucose solution but didn't know why this was happening. It was at that point the Prentice team decided to transfer her to Children's so she could be monitored by a pediatric endocrinologist. With that, I quickly got discharged from the hospital so I could be with her. The transfer in an ambulance happened on Monday evening and we met E at Children's which is thankfully even closer to our house than the Women's Hospital.
(picture of E in NICU)
At Children's they were able to stabilize her glucose levels even more and get her up into the range of 60, 70 and even some 90 readings. She started eating again (mom's milk tastes so yummy!) and today was stable. She is being evaluated by an endocrinology team at Children's who is waiting for numerous test results to come back that Prentice ordered. Tomorrow they will scale back the glucose solution and see what her readings do. If she falls below the 50 range, they will run the same battery of tests that the Women's Hospital ordered and compare/contrast results and hopefully draw some conclusions. She is definitely in the right place with an amazingly talented medical team just being patient trying to figure out why this happened. And we were told by one person on the team that there just might not be a medical answer and she bounces back on her own. We'll see what tomorrow and the next day bring. Until then, we'll try to update the blog regularly with updates since the information comes slowly some days and rapidly on others.
Here's two pictures of E in the Children's NICU:
At Children's they were able to stabilize her glucose levels even more and get her up into the range of 60, 70 and even some 90 readings. She started eating again (mom's milk tastes so yummy!) and today was stable. She is being evaluated by an endocrinology team at Children's who is waiting for numerous test results to come back that Prentice ordered. Tomorrow they will scale back the glucose solution and see what her readings do. If she falls below the 50 range, they will run the same battery of tests that the Women's Hospital ordered and compare/contrast results and hopefully draw some conclusions. She is definitely in the right place with an amazingly talented medical team just being patient trying to figure out why this happened. And we were told by one person on the team that there just might not be a medical answer and she bounces back on her own. We'll see what tomorrow and the next day bring. Until then, we'll try to update the blog regularly with updates since the information comes slowly some days and rapidly on others.
Our warmest thoughts and hopes are with you, guys. Congratulations, and may it all go smoothly from here.
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